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Rare Patient Research
Custom market assessment and Decentralized Clinical Trials (DCTs) for rare disease patients across the GPRM. Get the benefit of HIPAA-compliant call centers, RWE registries, and advanced qualitative research to overcome geographic barriers and ethical complexities.
Strategic Research for Rare Diseases in the GPRM Frontier
The Great Plains and Rocky Mountains (GPRM) region has a significant need for rare disease research due to its vast geography and access challenges patients. Waller Hall Research offers innovative solutions to turn these challenges into opportunities impactful clinical research. We prioritize bringing trials directly to patients, ensuring inclusion, equity, top-notch data integrity.
RPM and patient-reported outcomes generate Real-World Evidence (RWE which is vital for understanding disease progression and facilitating trial design market access.
Our Qualitative Research uses online tools like virtual focus groups (s). This method breaks geographic barriers and encourages deeper discussions on sensitive topics due to online anonymity.
All patient outreach and contact center operations mandate the use of platforms that provide a Business Associate Agreement (BAA) and implement technical safeguards.
Local Healthcare
Market Opportunities
Regional Disease Burden
The Rockies and High Plains contribute significantly to vector-borne diseases due to local ecology. Our research offers vital insights to address these public health issues beyond rare disease trials.
Agricultural Worker Health Disparities
We research health risks for agricultural workers in the Great Plains, who often musculoskeletal issues and chronic diseases. By studying these groups we aim to reduce disparities and improve health promotion efforts.
Enhanced Quality of Life (QoL)
Remote Patient Monitoring (RPM) andentralized Clinical Trials (DCTs) improve life for rare disease patients by reducing travel to trial sites. This allows home management, enhances communication with researchers, and supports treatment adherence.
Localized Gateway Community Insights
Capture the thoughts and opinions of real users, delivering insights into the guest experience. This is critical for optimizing digital platforms, mobile pass technology, and streamlining booking processes.
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High-Sensitivity Qualitative Virtual Focus Groups
WHR utilizes web-enabled focus groups specifically because the relative anonymity provided by the internet setting can significantly facilitate discussion of highly sensitive and intimate topics.
Centralized Rare Disease Logistics & Coordination Hub
The primary Centralized Coordinator Hub for managing all complex patient scheduling and logistical needs for dispersed rare disease patients in the GPRM, including telemedicine visits, home health services, and direct-to-patient (DtP) logistics.
Co-Pay and Patient Assistance Program (PAP) Enrollment
Facilitates enrollment in financial support programs, like patient assistance programs and co-pay foundations, easing the financial burden that often hinders access to clinical trials.
Key Opinion Leader (KOL) & Prescriber Insight Mapping
Given the outsised role rare disease specialists and Key Opinion Leaders (KOLs) play in treatment decisions, WHR conducts targeted market research through In-depth Interviews (IDIs) and proprietary surveys.